Cystic fibrosis (CF) is a chronic inflammatory disease that affects the body’s ability to produce and release proteins. The disease is caused by an inherited gene mutation, and testing for the CF gene is recommended for those with a family member with the disease. A healthy lifestyle, including regular physical activity and good nutrition, is crucial for managing CF. Evidence shows that exercise helps improve lung function in patients with CF.
Managing cystic fibrosis can be overwhelming, but healthcare providers can help. Regular physical activity and good nutrition are essential for maintaining a healthy and fulfilled life. Lifestyle changes, such as eating a high-calorie, high-fat diet, taking vitamins and mineral supplements, and staying fit, can help manage symptoms and slow the progression of the disease.
There is no cure for CF, but genetic testing should be performed for couples with CF or those who have a family member with the disease. Physical activity improves exercise capacity, slows the decline in lung function, and enhances Quality of Life (QoL) in patients with CF. A high-calorie diet containing all essential nutrients without restriction on fat intake is recommended, along with pancreatic enzymes to control digestive issues.
In summary, cystic fibrosis is a complex condition that requires a comprehensive approach to manage and prevent. Lifestyle changes, such as exercise, a healthy diet, and regular exercise, can help prolong and improve life for those living with CF.
📹 Cystic Fibrosis 101
Pulmonologists and a person with CF answer questions like what is cystic fibrosis, what are cystic fibrosis treatment options, what …
Who is the longest living person with CF?
Marlene Pryson, 86, is one of the oldest individuals living with cystic fibrosis. She has been a friend and colleague for over 30 years, serving as CF clinic coordinator at Michigan State University, Kalamazoo Center for Medical Studies for 25 years. Marlene’s early life was challenging, with her parents being divorced and her mother abandoning her at age 11. After a brief stay with her aunt, she found herself on her own again. She was directed to a boarding house for women and worked odd jobs to support herself.
These experiences prepared her to deal with life, teaching her to survive situations and accept things that cannot be changed. She memorized the Serenity Prayer and still lives by it, which teaches her to accept the things she cannot change, the courage to change the things she can, and the wisdom to know the difference.
Can you lead a normal life with cystic fibrosis?
Children with CF typically maintain good health until adulthood, participating in activities and attending school. Many young adults finish college or find jobs. However, lung disease worsens, leading to disability. The average life span for people with CF who live to adulthood is 44 years. Common complications include chronic respiratory infections, bowel problems, chronic respiratory failure, diabetes, infertility, liver disease, malnutrition, nasal polyps, sinusitis, osteoporosis, arthritis, recurring pneumonia, pneumothorax, right-sided heart failure, and colorectal cancer.
How does cystic fibrosis affect lifestyle?
To improve overall health, follow a nutrition plan with your healthcare provider and consider increasing your food or calorie intake. A high-sodium eating plan or sodium supplement may be recommended for those at higher risk of overweight and obesity. Physical activity can improve lung function, airway clearance, strength, and body weight. Consult your healthcare provider before starting any exercise program.
Managing stress through relaxation techniques can improve quality of life. Talk to your healthcare provider or mental health professional if you feel anxious, depressed, or have panic attacks. Quit smoking and inhaling secondhand smoke, as they increase the risk of complications. Secondhand smoke is linked to worse lung function and slower growth in children with cystic fibrosis. Smoking is also linked to pancreatitis, another complication of cystic fibrosis.
Limiting alcohol intake is crucial, and discussing it with your healthcare provider may recommend reducing or stopping consumption. Avoid drinking if you are pregnant, under 21, taking certain medicines, or have certain medical conditions, including cystic fibrosis.
Getting good-quality sleep is essential for cystic fibrosis patients. Ask your healthcare provider about sleep tests and treatments, develop healthy sleep habits, and maintain a cool and dark bedroom.
Infections remain a serious problem, leading to worsening lung disease or death. To protect each other, people with cystic fibrosis should stay 6 feet apart, but this advice does not apply to people in the same household.
Can you get cystic fibrosis later in life?
Cystic fibrosis is a rare genetic disorder with over 1, 800 known mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene. It is often diagnosed in adulthood. The specific treatment plan is dependent on the individual’s condition. At Yale Medicine, patients and their families collaborate with the medical team to develop the most suitable regimen, which may include a combination of different treatments. The team works in close collaboration with each patient, with the objective of ensuring the optimal outcome.
What lifestyle changes help cystic fibrosis patients?
Managing symptoms of Chronic Obstructive Pulmonary Disease (CF) requires lifestyle changes, including good hygiene, vaccinations, maintaining a healthy weight, and engaging in physical activity. Patients should continue treatments, including medicines, supplements, and daily airway clearance techniques, as directed by their physicians. They should also be alerted to any complications to provide supplemental medication to help the immune system fight off infection.
Local chapters of the CF Foundation provide support for parents of newly diagnosed CF in children and older individuals, while the CF Patient Assistance Foundation helps people afford medication and devices, and assists in applying for supplemental social security and disability benefits. The CF legal hotline provides information about rights for individuals with CF.
Why high fat diet for cystic fibrosis?
Cystic fibrosis patients require a diet high in calories and fat to absorb fat and nutrients effectively. This is due to the thick, sticky mucus produced by their body, which makes it difficult for them to use 100% of their energy. Additionally, fighting infections and coughing regularly burns extra calories. Maintaining a healthy weight is crucial for fighting infections and maintaining strong lungs and body.
Making small changes in daily routines can significantly impact weight. To plan meals, give yourself time to think about the busy day ahead, where you will spend time, where you can easily store food, and if you have enough enzymes.
Can fibrosis be prevented?
Pneumonal fibrosis can be prevented by quitting smoking, maintaining a healthy diet, exercising regularly, seeking treatment for chest infections, and avoiding known causes and risk factors. However, idiopathic pulmonary fibrosis can increase the risk of lung cancer, pulmonary hypertension, lung infections, anxiety, and depression. To prevent complications, it is essential to maintain a healthy lifestyle and avoid known causes.
Is there any way to prevent cystic fibrosis?
Cystic fibrosis (CF) is a lifelong condition with no preventable symptoms. However, if you carry a CFTR gene variant, you can inquire about prenatal genetic testing to determine the likelihood of your biological children having CF. Symptoms include frequent lung infections, loose or oily stool, trouble breathing, wheezing, sinus infections, coughing, slow growth, and failure to thrive. Atypical CF symptoms may also occur, and over time, you may experience additional symptoms.
What to avoid with cystic fibrosis?
Cystic fibrosis (CF) is a genetic condition that affects the body’s epithelial cells, causing issues with the body’s balance of salt and water. This leads to thick mucus, which blocks the lungs and other passageways, causing infections and breathing problems. A healthy diet for someone with CF should include five servings of fruits and vegetables daily, include protein in meals and snacks, choose whole grains over refined grains, avoid sugary drinks, and eat more homemade meals.
Does cystic fibrosis change with age?
People with CF may face barriers to forming relationships due to symptoms, lack of independence, and embarrassment. As the condition worsens, adult relationships may be affected as partners or family members take on more caring roles. For help and support, consult your specialist CF team or call the helpline at 0300 373 1000. You can also share your thoughts and feelings with the online community on the forum and via Facebook.
Can cystic fibrosis be stopped?
Cystic fibrosis (CF) is a condition that results in the production of thick mucus in multiple organs, including the lungs, pancreas, and intestines. This can lead to a number of complications, including malnutrition, poor growth, respiratory infections, breathing problems, and chronic lung disease. The majority of U. S. states mandate newborn screening for cystic fibrosis (CF), with the objective of alleviating symptoms, averting complications, and decelerating the progression of the disease.
📹 Shrink FIBROIDS (Little Known Scientific Fix) 2024
Shrinking uterine fibroids without surgery is possible by using your diet to return your hormones to a healthy status. Eating less red …
I’m currently pregnant and noticed about a month ago that one side of my abdomen was larger than the other. My doctor said it may be a fibroid, when I went for my ultrasound it indeed was a fibroid that was about 4 inches long at the time. I definitely worry about it since I’m pregnant and I just pray that everything is okay. I am unable to do any low carb diet because I have gestational diabetes and therefore I have to eat a certain amount of carbs per meal. I don’t know if there is any other way to try to shrink my fibroid, but I appreciate this article it was very informative.
Reading the comments I’m very skeptical but I’m giving it a try anyway. . I’ve been struggling with 10 cm fibroid causing every single problem possible for 5 years. I’m not a meat eater at all, so I really have to push myself to eat meats, although I might stick with fish only. January 1st I started my 90 day keto challenge. I’ll be back with updates. Thank you, Dr. Berry for giving me a new hope, to try something that can finally relieve my symptoms!
4 years ago I was diagnosed with a 2cm fibroid, the doc told me it was normal for women and nothing to worry about if I had no symptoms. 3 years ago I decided it was time to have a baby and tests found out my fibroid became size of an adult fist on then bottom of my uterus. I was having heavy bleeding and anemia but I didn’t realize it was not normal…I had to do a surgery to remove it and still now waiting to have a baby because of the surgery… i know life is not reversible and I should be responsible for not caring and learning enough for my own Heath, I just hope more and more ppl will be self educating and more doctors like you to help ppl just what a real doctor was suppose to do. Thank you Dr. Berry.
Doc one thing why are you not mentioning the estrogen dominance, that eliminating meat and other bad food-simple carbs, sugar, dairy, helps many women to shrink fibroids. I know you are pro good quality meat, but a plant based diet works better for shrinking carbs, lots of greens, high quality proteins and much less carbs esp SWEETS are a no.
Very interesting. I started my period at age 11. I’m 35yo now and have large multiple fibroids that cause pressure on my bladder and bowels. I have severe heavy painful long periods with the longest lasting 7 weeks. I have been told I should get hysterectomy. But I want to try Leto or carnivore for a while and see what happens first before doing surgery. Thank you! 🙏🏾
Having had these issues my entire life, diagnosed as a teenager, who has never been overweight and has eaten relatively healthy my entire life, I will say that diet is always a major contributor and a major healer but in this case it is more of a hormonal issue. I’m low carb at this point in my life. I am healthier because of it but it hasn’t done anything for my fibroids, etc.
Hi Dr Berry. Thank you for this article. I agree with all of what you say except one statement. Not all fibroids are benign. I had fibroids and after surgery they found that I had Leiomyosarcoma. Please amend this statement it does happen. Yes it’s rare but it does happen. Because it’s just not true. Thankfully I am a 19 yr survivor I am in stage 4 after having it in my lungs twice.
Thank you for this article. I am obese I was diagnosed with a type 2 diabetes . I have a 10 cm fibroid and a 6 cm one. My symtoms of the fibroid have improved after I started to go on a low carb diet. I have not been very consistent with my diet. My glucose still like a jo jo during the day. After this article I will stick to the keto diet.
Let’s not lump simple and complex carbs together; they’re not even remotely close to the same thing! Maybe this will shrink your fibroids, maybe not, but a keto or carnivore diet will CERTAINLY give you some new and unpleasant problems to deal with. I was hoping for much better advice from such a popular article!